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Running for a cure for Ellie Tavani
Page Creator: Michael Tavani
Event: Chicago Marathon 2006 - Chicago, Illinois
Event Starts: Oct 22nd 2006
Training buddies: Training solo
Fundraising Page Image
How cute is that face? (not mine)
About our nonprofit:
Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
Description: Finding a cure for Epidermolysis Bullosa and providing resource, referral and support services for persons with EB.

Mission: DebRA of America is the only national oganization...
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Fundraising target: $2,000
So far we have raised: $9,074.20
Fundraising progress
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Our personal message:
Dear Friends and Family,

Update -- October 28, 2006 -- The marathon pictures are here.
Update -- October 25, 2006 -- The marathon weekend was a success!  Supported by my parents, Steph, and Ellie's dad, Andrew, I finished the marathon in 5 hours, 4 minutes.  www.do26.com will continue to stay active and we hope the recent surge continues.  Photos and a recap coming soon.
Update -- October 16, 2006 --  One week to race day and we've raised $7,416.20.  Let's make one final push.
Update -- August 16, 2006 -- Wow!  Over $5,000 for EB research!  Ellie is so proud! The pace has increased -- let's finish strong!
Update -- August 9, 2006 -- A big "thank you" to everyone for your overwhelming generosity.  Please continue spreading the word to family and friends because every dollar helps in finding a cure!
Update -- August 8, 2006 -- The support from family and friends has been unbelievable!  We reached 100% of our goal in less than 24 hours!  Ellie says: Let's keep it going!

I am running the Chicago Marathon on October 22, 2006.  Originally, I signed up for the marathon to challenge myself.  However, my run takes on much more importance as I am running for my niece, Ellie to help raise awareness and money to fund research for Epidermolysis Bullosa (EB). 

This cause is especially meaningful to our family and friends that know Ellie.  As many of you know, my brother, Andrew and his wife, Shawn had a daughter April 28th who was born with EB.  EB is a rare skin disease in which painful blisters form due to minor friction or even no friction at all.  Any runner knows that a blister on your foot can be extremely painful.  Well, these blisters can form anywhere and everywhere on Ellie's little body.  The disease is so rare that there is no cure.   It does not go away or get better with age.  Even though Andrew and Shawn have become great at treating the wounds through daily bandaging, blisters form anyway.

Because I think this cause is so worthy, I would like to ask for your support. I have made a personal commitment to raise at least $2,000 for EB research before October 22, 2006 -- and I hope to raise even more.  I'm not asking you to support me, I'm asking you to support Ellie, because running a marathon isn't as challenging as living with EB.

Donating through my page is simple, fast, secure, and 100% tax deductible. All donations are sent directly to Dystrophic Epidermolysis Bullosa Research Association of America, Inc.

Ellie and I sincerely appreciate your generous support!

-- Michael Tavani

m_tavani@yahoo.com

P.S. Please forward this page to your friends and family that might also like to help.  It's short and easy to remember - www.do26.com.


Online Sponsors to date: Page 1 of 2     Latest  << | < | > | >>  Earliest  
Display Name Date Amount  Comment
Tom & Nancy Carol Stuetzer 11/16/2006 $50.00 We wish Ellie the best. 
SHANDEL 11/12/2006 $25.00 IN MEMORY OF NONA- MARIA TAVANI 
Mary Gramling 11/8/2006 $100.00 For Ellie in memory of Nona Marie 
cathy jones 11/2/2006 $25.00  
Mandy and Scott Katz 10/29/2006 $25.00 Congrats. Pictures look great! 
msgergans@bellsouth.net 10/27/2006 $18.00 We're sorry for your loss. We know Nona will be missed. Love, Michele and Steve 
sricmd@myacc.net 10/27/2006 $18.00 In memory of Nona, Love Marilyn and Stan 
Carrie Meier 10/26/2006 $25.00 For darling Ellie and in memory of Jonny Kennedy 
Janice Jordan 10/26/2006 $25.00 Warmest wishes to Ellie 
big e 10/26/2006 $25.00 bod bless ellie and johnny kennedy 
Linda and Lester Czuper 10/26/2006 $18.00  
Brittany 10/26/2006 $50.00 I watched the show on TLC, it was my 1st time hearing about EB. 
Gene & Raquel Good 10/26/2006 $20.00 You're in our prayers. God Bless!!! 
Gregg Tavani's U11 Bronze Team 10/25/2006 $50.00 In memory of Grandmother Tavani 
Asma Khan Afeef 10/24/2006 $500.00 Your niece is a true inspiration as my niece was to me.  
Heather Linn 10/23/2006 $10.00 Best of Luck! 
Marcy Rosenberg 10/22/2006 $20.00 Good luck! 
Chris, Debbie & Luke 10/21/2006 $50.00  
Sue & Dick DeGennaro 10/19/2006 $50.00 Good Luck for Ellie and for your run 
Ryan Benator 10/18/2006 $25.00 Best of Luck! 
Heather Frohman 10/18/2006 $25.00  
Lori Clayman 10/18/2006 $25.00  
Melanie 10/18/2006 $25.00 good luck... Jeremy,Jonah and I will be thinking of you... 
The Provost Family 10/18/2006 $25.00 Our daughter has EB. THANK YOU for your efforts!! We'll be thinking of you - Run strong!! 
David H. Goldenberg 10/17/2006 $50.00 All of us at Hillyer support Ellie !!! 
Scott Zweigel 10/17/2006 $26.00 Good work T 
chris kennedy 10/17/2006 $50.00  
Michael Campbell 10/17/2006 $10.00 Get ur done, Tavani! 
The Nelson Family 10/17/2006 $25.00 Good Luck! You are doing a great thing. 
Theo Economos 10/17/2006 $50.00 Well in Michael! Run em down buddy 
steve malt 10/17/2006 $5.00 Sorry, I meant niece . . . Good Luck Brother!!! 
steve malt 10/17/2006 $10.00 Mike - My prayers are with your cousin, you are the MAN!! 
Darren Rovell 10/17/2006 $10.00 Good luck, Michael 
Teri Xerogeanes 10/17/2006 $100.00 Hugs and Kisses to Ellie 
linda williamson 10/17/2006 $25.00 let's hear it for ellie...may she, her mom and dad be the big winners 
The Feingold's 10/17/2006 $50.00 Sarah gives you a kiss as you run for her "cousin" Ellie 
Michelle & Ben Needle 10/17/2006 $18.00 Good luck to you and Ellie! 
Priscilla Rivers 10/14/2006 $25.00 Best wishes to you both!  
bonnie 10/13/2006 $25.00 i hope this helps little ellie 
Shumika Robinson 10/11/2006 $50.00 GO Tavani!!! You can do it!!! 
Philip, Allyson(Moor), & Naomi Jones 10/9/2006 $25.00 Good luck to you both. 
Chrissy, Justin & Camryn Mercer 10/5/2006 $100.00 Camryn and Justin both have EB. Good luck and God Bless! 
Michael and JoAnn 10/3/2006 $50.00 Our love and prayers for Ellie! 
Lance Einstein 9/28/2006 $10.00 Best wishes to Ellie! 
Matt Parsons 9/25/2006 $40.00  
emailatlast@aol.com 9/24/2006 $50.00 sending God's angels to carry you onward 
Karen, Steven, Bennett and Landon Denker 9/21/2006 $25.00  
ali5788 9/18/2006 $10.00 for beautiful baby Ellie  
Dean & Kristina 9/18/2006 $100.00 With love towards Ellie and Kate! 
Anonymous 9/17/2006 $50.00  
mark walton 9/14/2006 $50.00  
unknown =) 9/13/2006 $3.00 good luck to you!! run over the wall!! 
Charlie Eldredge 9/12/2006 $25.00  
Anonymous 9/12/2006 $25.00  
Kaci Kohler Line 9/12/2006 $25.00 I wish you the best of luck! 
Thompsons 9/11/2006 $150.00 From 2yr old Kate who has EB also 
McCoy family 9/8/2006 $50.00 for two year old Kate who has lots of spunk 
Dave and Nancy 9/8/2006 $50.00 For Ellie and our friend Kate 
Suzanne Novak 9/8/2006 $25.00  
Shari, Lawrence, Hailey and Sam Bayer 9/5/2006 $25.00 Good for you! 
Luly Garza 9/5/2006 $25.00 My best wishes for Ellie and her Family. God Bless you all! 
Karla, Mike, Jake & Ginger 9/5/2006 $100.00 For sweet Ellie. We love you!!! 
Adriana Rosano (Brian Dragutsky's co-worker) 9/3/2006 $25.00 What a great way to raise awareness: Good Luck! 
mirana's family mirana 9/2/2006 $100.00 our heartiest wishes 
Aunt Abby and Uncle Larry 9/1/2006 $25.00 For our great niece Ellie! 
Alfredo Mesa 8/30/2006 $50.00  
Matt Dranove 8/28/2006 $10.00 Keep it up. 
Susie Silverman 8/27/2006 $18.00 Best wishes to all of you! 
Anonymous 8/26/2006 $50.00 Make it happen 
Randy and Caroline Gold 8/25/2006 $50.00 Thank You. 
Brooke and Cole 8/25/2006 $50.00 So proud of you! You doing an incredible thing! 
Eric & Alli Stuetzer 8/24/2006 $50.00 Good Luck T! 
Bill & Liz Collins 8/23/2006 $104.00 Best wishes for Ellie. Have a great run, Michael. 
Amy Smith 8/22/2006 $25.00 Good luck, Michael! 
Sara and Hugh Wheeler 8/21/2006 $25.00 Our love to Shawn, Andrew, and precious Ellie. 
AMY MORRIS STRICKLAND 8/21/2006 $25.00 WE WISH ELLIE A HEALTHY AND BRIGHT FUTURE! 
Angie Berlin 8/21/2006 $25.00  
Sonbol Shahid-Salles 8/19/2006 $26.20 Keep thinking of Ellie as you hit mile 22! Way to go, Michael!!  
Gary & Marcia Ranart 8/18/2006 $25.00 Pulling for Ellie 
brian dragutsky and kelly muys 8/18/2006 $45.00 good luck, great cause! 
Kathy and Jim D. 8/18/2006 $100.00 Adorable baby; great family 
Annette and Jack Rau 8/18/2006 $36.00 For a beautiful baby Ellie 
Matt Beveridge 8/18/2006 $20.00  
Melissa and Bruce Titen 8/17/2006 $100.00  
Laura Gramling 8/17/2006 $25.00  
Mary G 8/17/2006 $265.00 a wonderful baby; a great uncle 
Renee C 8/16/2006 $25.00 Good luck! 
Jeremy Nickels 8/16/2006 $25.00 Thanks - my brother and i have a mild form of EB also. 
Sherry Morrison 8/16/2006 $25.00 Good Luck, Michael. Keep up the great work. 
Todd Lowther 8/16/2006 $25.00 Good Luck! 
Brandon and Stacie Ramo 8/15/2006 $52.00 Good luck Michael and Ellie 
Regan Maeroff 8/15/2006 $10.00 Mike my family and I are rootin for you and Ellie 
Howard & Greta Levy & Family 8/15/2006 $36.00 Good Luck & Best Wishes 
Kristi & Derek Yarnell 8/15/2006 $25.00 Good Luck! 
bridgebum 8/15/2006 $20.00 go to it 
Aunt Paulette 8/14/2006 $100.00 anything for Miss Ellie, love to Shawn, Andrew and Mike 
Alana and Marc Sonenshine 8/14/2006 $26.00  
Teri & Rusty Cullens 8/14/2006 $50.00 Go get 'em, Mike!  
Fred Wachter 8/14/2006 $36.00 Best of luck to you and Ellie. 
Cara Ball 8/14/2006 $25.00 Good Luck Michael! 
  Page 1 of 2     Latest  << | < | > | >>  Earliest  
* Total raised online: $9,004.20
Amount raised offline: $70.00
Grand Total: $9,074.20
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